antenatal screening programme

Cystic fibrosis (pregnancy)

Cystic fibrosis is a genetic condition, which can be fatal if not treated. People with cystic fibrosis struggle to absorb nutrients from food. They will also experience recurrent chest infections which may lead to pneumonia.

Read more about cystic fibrosis on the NHS website.

UK NSC screening recommendation Based on the last UK NSC review of this condition that occurred in August 2019.

Screening is not currently recommended for this condition.

Screening for cystic fibrosis in pregnancy is not recommended. This is because:

  • many genes may play a role in causing cystic fibrosis, this makes it difficult to know which ones to screen for
  • there has been no new evidence to support screening all women during pregnancy.

Supporting documents from the 2019 review

Evidence Review Cystic Fibrosis (2019)
This document provides the evidence on which the current UK NSC recommendation is based.

UK NSC coversheet & consultation responses Cystic fibrosis (2019)
This document summarises the review process including the public consultation comments.

Review cycle

Date previous review completed: 2019

Next review estimated to be completed: 2022 to 2023.

To see previous evidence reviews, visit the UK NSC archive.

Organisations interested in Cystic fibrosis (pregnancy)

These organisations have expressed interest in this recommendation and may submit responses to evidence reviews.

List of organisations

If you think your organisation should be added, please contact us.