newborn screening programme
Sickle cell disease (newborn)
Sickle Cell disorders are a group of genetic conditions. In these disorders some red blood cells are sickle shaped which causes them to clump together. These clumps can then get stuck in the small blood vessels. This can then cause an inflammatory reaction.
» Read more about sickle cell and thalassaemia on NHS UK
UK NSC screening recommendation
The UK NSC recommends screening for SCD. In 2015, the UK NSC reviewed whether there was any evidence to alter or stop SCD screening and found nothing to suggest that screening should not continue.
Supporting documents from the 2017 review
NSC Pilot Triage SCD
This document provides the evidence on which the current UK NSC recommendation is based.
Screening around the UK
The UK NSC recommends screening for this condition, however this may vary slightly depending on where you are in the UK.
Review cycle
Date previous review completed: 2017
Next review estimated to be completed: 2021 to 2022.
To see previous evidence reviews, visit the UK NSC archive.
Organisations interested in Sickle cell disease (newborn)
These organisations have expressed interest in this recommendation and may submit responses to evidence reviews.
List of organisations
- British Association of Perinatal Medicine
- Faculty of Public Health
- Genetic Alliance UK
- Royal College of General Practitioners
- Royal College of Midwives
- Royal College of Paediatrics and Child Health
- Royal College of Physicians
- Royal College of Physicians and Surgeons of Glasgow
- Royal College of Physicians of Edinburgh
- Sickle Cell Care Centre
- Sickle Cell Society
If you think your organisation should be added, please contact us.